This blog post is sponsored by Semantix Ltd.
Web 2.0 & social media for patients
The first on the scene was the empowered patient. Patients are participating in online communities to share and discuss daily life struggles to coping with rare diseases.
|11.11.1. 1.||MyHealthInnovation.com – (like mystarbucksidea.com for health)||My Health Innovationallows people to submit ideas, other users can vote on it, and allows for ranking, eg. to create a list called “Top Ideas”. Their tag line: share, vote, and say thanks for low-cost, low-tech health ideas.One interesting aspect to the site is its acknowledgement of the power of gratitude and that in healthcare, thank you’s or gratitude can often not be public enough. For this reason, they wanted to provide a way to say thanks and added a THANKBook that collects expressions of thanks for how an idea changed your life positively, maybe forever.||WebsiteTwitter|
|2.||HealthChapter.com||A place to talk about how to live well with disease, ask questions, share information about what is working for you, get sympathy, exchange ideas, request and recommend the best doctors, support and friendship from other patients suffering from the same disease.This website is an online community that has videos, podcasts, health tools, ability to leave comments, a facebook page and e-newsletter subscriptions.||WebsiteeNewsletter subscriptionFacebook Page: 310 fans|
|3.||Diabetes Mine Blog||Here you’ll find 5 years’ worth of info on every imaginable aspect of living with diabetes — from food scales to pharma news and book reviews, to the exasperating things other people say.||BlogTwitterFacebook: 503 fans|
|4.||Patients Like Me||PatientsLikeMe.com is a platform for collecting and sharing real world, outcome-based patient data (patientslikeme.com) and establishes data-sharing partnerships with doctors, pharmaceutical and medical device companies, research organizations, and non-profits.||WebsiteBlog|
|5.||Relief Insite – Consumer Web Apps||This is a site that allows people to map, monitor and analyze their pain. ReliefInsite.com™, is a patented, secure, HIPAA-compliant web-based platform that provides visually-oriented pain assessment and tracking.Through the collection of structured and unstructured data and preparation of comprehensive reports, ReliefInsite provides a longitudinal perspective of a patient’s condition in real-time, enabling improved quality of care and assessment of outcomes. This site also uses video, social bookmarking such as digg, yahoo, goolge, delicious and facebook.||Website|
|6.||The Weight Tracker – iPhone app||The Weight Tracker iPhone application allows you to easily track your weight on a daily basis. It can also synchronize your personal weight entries withThisCityIsGoingOnADiet.com. This application was designed and written exclusively for the iPhone v2.0 Operating System using the Apple iPhone SDK.||iPhone Application|
|7.||Pharma Surveyor – Consumer Web App||It’s not just interactions, but toxicities involved with each drug that can affect patients. This tool reveals a much broader assessment of med risks. By integrating with partners like DestinationRx, this tool provides an additional layer of safety and vetting using powerful math and analytics. Risk is shown for each drug, plus the cumulative risk of an entire multi-drug regimen. By adding personal information about the side-effects the patient is showing, it can link side-effects to the current drugs. Then it can do a diagnosis showing where the risk is coming from, with an option to show potentially safer options that still deliver the needed therapeutic benefits.||Website|
|8.||ADAM – iPhone App||The Adam Health NavigatorPuts personalized health content on iPhone–click a body part on an image of the body, or search for information. Essentially it puts commodity-level health information on the small screen. Cool features, some geomobile-related some leveraging multi-function nature of iPhone: Find nearest ER; prompt to call 911; educational videos for conditions; connect to doctors in your neighborhood.||iPhone Application|
|9.||MyMedLab – Consumer Web App||Web-based tool lets you choose a lab test online. A physician approves order instead of a doctor’s visit in real life. You can find a lab in your area. The tools help you choose tests based on gender, age and disease profile. Results interpreted by an MML doctor and put in your PHR.||Website|
|10.||Google Health – Online Medical Records for patients||
|11.||Microsoft’s Healthvault – Online Medical Records for patients||HealthVault is divided into two sections, one for individuals and another for healthcare professionals.It lets you …
||WebsiteTwitterFacebook: 1,154 fans
YouTube Channel: 76 subscribers
|12.||Vitals – Choosing the right doctor||Vitals was created to give consumers the tools — for the first time — to make informed decisions about which doctor to choose. Our web site offers you a variety of ways to find a doctor that’s right for you.We do this through our 360 view — factual information on a doctor’s expertise and practice, consumer reviews, and recommendations from other doctors. Once you’ve decided what information you need, you can use Vitals to do a pre-visit checkup on your doctor. At no cost to you.Vitals compiles information on physicians from a wide variety of sources. The result is a free Physician Profile, which is made available to consumers, at no cost.||Website|
|13.||Health Grades – Rating doctors, hospitals and nursing homes||HealthGrades’ healthcare ratings, information and consumer decision-support resources serve the following groups:ConsumersVisitors to HealthGrades.com find quality ratings and cost information for the nation’s 5,000 hospitals and 16,000 nursing homes as well as in-depth profiles of the nation’s 650,000 physicians. As a leader in the consumer revolution in healthcare, HealthGrades receives more than five million unique visitors to its consumer Web site each month.
HealthGrades helps hospitals understand, improve and communicate the quality of care they deliver through a suite of products and physician-led clinical-advisory services. HealthGrades currently works with more than 400 hospitals nationwide and produces well-respected public studies of hospital quality in areas that include clinical excellence, patient safety and women’s health.
Many of the nation’s largest health plans and employers offer their employees and plan members access to HealthGrades Health Management Suite, a complete set of decision-support tools that include provider ratings, health optimization modules and healthcare finance tools.
HealthGrades helps more than 40 liability insurance companies, including the top three nursing home and hospital insurers, assess providers’ quality and risk potential.
HealthGrades allows physicians to educate patients about their specialties through HealthGrades’ consumer Web site and the HealthGrades Connecting Point™ Program.
|14.||Everday Health – Portal||There’s much to explore on EverydayHealth.com, including:
||WebsiteTwitterFacebook Page: 253 fans|
|15.||Ask Manny Hernandez(the founder of Tu Diabetes)- Social media, non-profits and health 2.0 blog||About Manny Hernandaz (Diabetes patient blog)> social media expert and diabetes advocate
> author of ning for dummies
> twitter marketing for dummies contributor
> president of the diabetes hands foundation
> founder of tudiabetes + estudiabetes
|16.||Six Until Me – Diabetes patient blog||A blog by Kerri Monroe who is a diabetes sufferer.||BlogTwitterFlickr|
|17.||Health 2.0 Blog||A community blog for and by the Health 2.0 community.||Blog|
|18.||Organized Wisdom Blog – wikipedia for healthcare||
Liz Azyan is interested in the ways new kinds of social data and technology introduce challenges and opportunities to society. Get involved with Liz’s latest project here.